Home The Facts

  • Tourette Syndrome is NOT contagious. You can not catch it from me. You have to either be born with it or sustain a brain injury.
  •  Boys are 75% more likely to have Tourette Syndrome than girls. Tourette seems to be less severe in girls.
  • 10 children per 1,000 in the United States have Tourette's Disorder. 1 in 1,000 suffers from full blown Complex Tourette Syndrome with both motor and verbal tics like me.
  • There is no cure.
  • It is named after the French Neurologist  Georges Albert Edouard Brutus Gilles de la Tourette, who discovered it in 1885.
  • Only 10% of people with Tourette Syndrome who display vocal tics will have Coprolalia (using profanity).
  • Seventy percent of children with Tourette Syndrome will improve by the time they reach adulthood. Most tics will not be observed into adulthood. (But the bullying will stay with them forever).
  • We are not mentally retarded.  On the contrary, it is mostly the opposite. Most of us with TS and Aspergers have a very high level of intelligence.
  • Our condition worsens with anxiety, stress, over stimulation, and too much sensory. This is why we twitch and jerk even more when you stare at us and mock us. You are making us visably nervous and it is not funny. It may take our bodies weeks to calm down.
  • Tics come in waves. Motor and Vocal tics wax and wane in severity and frequency. All tics happen though everyday with no break.  When we speak with a difference in frequency, a good example would be: rolling your eyes and jerking your neck 80 times a day during a waning period vs. 500 times a day during a waxing period. Hard to believe, but true. Our bodies get really sore.
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acacia madrone
you are so awesome!
written by acacia madrone, August 31, 2010
You are so awesome Jaylen! I think that it is really cool that you spend so much time and effort to help us kids that have T.S. I think you will become very famous by helping everyone in the world with T.S. You will be more famous than Oprah! hehe smilies/smiley.gifsmilies/smiley.gifsmilies/smiley.gif

Love, Acacia
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you are awesome
written by acacia, August 31, 2010
you are awesome Jaylen i think its really cool you are putting so much time and effort into helping us kids with Tourettes Syndrom!! I think that you are goiny to become very famous by helping all these kids all around the world(just like Oprah)!!!!!! love acacia
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You are soo inspirational!
written by Connor (Hungary Creek Middle), March 29, 2010
Hi Jaylen! I absolutely love how you want to make a difference with bullying. I completely agree with you, bullying is not okay and its not funny. Bullying really hurts people. Its amazing how someone so young can make such a large impact on a world-wide issue like bullying! You are SOOO inspirational to everyone! You are setting a great example to be confident in you are. Thank you for showing everyone that bullying is wrong!
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Mom of TS child~
written by Tamara, November 06, 2009
Thank you so much for doing what I've been trying to hard to do, for so long!!! By raising awareness and taking a stand, children like you, my 8 yr old son, and MANY others may have a chance at what could be as close to a normal life as possible! You're a brave, strong little boy! Austin, my little guy with TS, also suffers from many other underlining issues. You're someone he can really look up to! Good luck to you Jaylen!!!

Love,
Another strong supporter~
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Spotlight on Tourette Syndrome!
written by J.C.Richardson III, November 05, 2009
Hey Jaylen,

I saw you on TV last night. You look like a movie star. You did a great job on getting the word out about Tourette Syndrome. And also about being bullied by other kids! Jaylen you are a good spokesperson on Tourette Syndrome. With you putting your self in the spotlight will go a long way on finding a cure one day. Jaylen keep up the good work.

All the Best
JC
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U ROCK!!!
written by Rebecca t, November 05, 2009
Hi I heard about your story i thought it was really inspiring. we are learing how to stop bullying in school!


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7 grade
written by ryan, November 05, 2009
like you web sitesmilies/smiley.gifsmilies/wink.gifsmilies/cheesy.gifsmilies/grin.gifsmilies/angry.gifsmilies/sad.gifsmilies/shocked.gifsmilies/cool.gifsmilies/tongue.gifsmilies/kiss.gifsmilies/cry.gif
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inspiring totaly
written by Tiffanie , November 05, 2009
Hi, I heard about your story and I have the same problem at my school.I am also learning about how to stop/avoid bullying.smilies/grin.gifsmilies/cheesy.gifsmilies/wink.gifsmilies/cool.gifsmilies/kiss.gifsmilies/smiley.gifsmilies/wink.gifsmilies/cheesy.gifsmilies/grin.gif
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...
written by YahnaiJah Gilliam, November 04, 2009
its me again all these facts about TS are cool. you know, Brad Cohen is a famous man with TS. He went from " Whoop....ja...JA! " to teacher of the year!
Jaylen
Hey Cheyanne
written by Jaylen, August 27, 2009
Hey Cheyanne thanks for commenting on my website!!!!!!!!!! Yes I love Taylor!!!!!!!!!Maybe one day I'll come to your school!!!!!!!!!!

Love,
Jaylen
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